Lupus Brain Fog

Lupus fog is a general name for the cognitive impairments that often appear with lupus, including concentration and memory problems, confusion, and difficulty expressing yourself.

Within two years of diagnosis, I noticed my mental lapses was getting bitterly worse. I walked my neighborhood and I could not figure out how to get home. A couple of times, my spouse picked me up because I was so far...I did not recall walking the distance. I use GPS while picking my kids at their school. I forgot books and major movie story lines. I would forget I was cooking until I smelled smoke. It is extremely scary, beyond frustrating and discouraging. My parents moved in with me shortly after for assistance.

My Rheumatologist sent me to a Neuropsychologist for testing. Professionals in this branch of psychology often focus on how illnesses of the brain affect cognitive and behavioral functions. There are series of tests that are required. Three days of verbal and cognitive testing, MRI scans and bloodwork. The test concluded that I did not have Dementia, Alzheimer's or Multiple Sclerosis (MS). I was relieved but disillusioned because there is nothing besides strategies to assist in daily life.

Put it in writing. Stay organized. Prioritize. Say it out loud. Keep good habits..

Having lupus fog has undermined my confidence and my sense of self, It’s important to remember that it's not you. I struggle with this one everyday.

You, being yourself, unknowingly inspire others to be themselves. -Mooji